Give Legacy, Inc. and Give Legacy - New Jersey LLC
Effective date: October 8, 2026
THIS NOTICE DESCRIBES HOW MEDICAL INFORMATION ABOUT YOU MAY BE USED AND DISCLOSED AND HOW YOU CAN GET ACCESS TO THIS INFORMATION. PLEASE REVIEW IT CAREFULLY.
This notice applies to Give Legacy, Inc. and its affiliate Give Legacy - New Jersey LLC, which operates our laboratory in Hoboken, New Jersey (together, "Legacy," "we" or "us"). It covers the health information we create or receive while providing semen testing, sperm freezing and storage, results reviews and related services, whether you reach us through our website, your client dashboard, a collection kit, a partner collection site, a clinician, an employer or a health plan.
In this notice, "health information" means information that identifies you and relates to your health, the care you receive or payment for that care.
You have the following rights over your health information. To use any of them, contact our Privacy Officer at the details at the end of this notice. We may ask you to make your request in writing and to verify your identity.
Get a copy of your records. You can ask to see or get a copy of your test results and the other health information we keep about you, on paper or electronically. Your results are also available in your client dashboard. We will usually respond within 30 days and may charge a reasonable, cost-based fee. You can also ask us to send a copy to a person you name.
Ask us to correct your records. You can ask us to correct health information you believe is wrong or incomplete. We may say no, and if we do, we will tell you why in writing, usually within 60 days.
Ask for confidential communications. You can ask us to contact you in a particular way, such as only by email or at a different address. We will agree to all reasonable requests.
Ask us to limit what we use or share. You can ask us not to use or share certain health information for treatment, payment or our operations. We are not required to agree. If you pay for a service in full out of pocket, you can ask us not to share information about that service with your health plan, and we will agree unless a law requires us to share it.
Get a list of disclosures. You can ask for a list of the times we shared your health information during the six years before your request, who received it and why. The list leaves out disclosures for treatment, payment and our operations, disclosures you asked us to make, and certain others. We provide one list a year for free and may charge a reasonable, cost-based fee for more.
Get a copy of this notice. You can ask for a paper copy of this notice at any time, even if you agreed to receive it electronically.
Choose someone to act for you. If you have given someone medical power of attorney, or someone is your legal guardian, that person can exercise your rights. We will confirm the person has that authority before we act. If you are under 18, your parent or guardian can generally exercise your rights for you, except where state law lets you consent to care on your own or limits a parent's access.
File a complaint. You can complain if you believe we have violated your rights, as described at the end of this notice. We will not retaliate against you for filing a complaint.
For certain information, you can tell us what we may share.
Family, partners and others involved in your care. You can tell us whether we may share information with a family member, partner or other person involved in your care or in paying for it. If you can't tell us your preference, we may share information if we believe it is in your best interest. We may also share information with a disaster relief organization so it can tell your family where you are or how you are doing. You can also name Authorized Users through your client dashboard; they receive the access your client agreement describes. If you die, we may share information about your stored specimens with the person you chose in your client agreement to receive them, or with that person's clinic.
Marketing and sale. We will not use or share your health information for marketing that a third party pays us for, and we will not sell it, unless you give us written permission.
We typically use or share your health information in the following ways.
To provide our services (treatment). We use your information to test, process, freeze and store your specimen and to deliver your results. We also receive the results of infectious disease tests you take through our testing partner, and use them to handle and store your specimen safely. We may share it with a clinician who ordered your test or referred you to us, a clinician you name, and a clinic or storage facility that receives your specimen at your direction. Example: we send your semen analysis report to the fertility clinic that receives your transferred specimen.
To run our organization (health care operations). We use and share information to operate and improve our services, including laboratory quality control, proficiency testing and accreditation, staff training, customer support, audits, legal and compliance work, and business planning. Example: our laboratory reviews results to check the accuracy of its testing.
To bill for our services (payment). We use and share information to bill and get paid by you, your health plan, an employer benefits provider or a government program. Example: we check with your health plan whether it covers your service, or give you a receipt you can submit for reimbursement.
Business associates. We share information with companies that perform services for us, such as testing partners, shipping and logistics providers, insurance eligibility services, payment processors, and technology, communications and data hosting vendors. Each must protect your information under a written agreement with us.
Transfers. If we move stored specimens to another storage provider, or sell or merge our business, we may transfer the related records to the new provider or owner, which must protect them.
Communications. We may contact you by email, text message, phone or through your client dashboard about your results, appointments, billing, storage renewals and services related to your care.
Research. We may remove the details that identify you, creating de-identified data, and use that data for research and to improve our services. We use or share identifiable information for research only with your written permission or as the law otherwise allows, such as with the approval of an institutional review board or privacy board.
The law also allows or requires us to share your information in other ways, usually for purposes that contribute to the public good. We must meet the law's conditions before we share information for these purposes.
To comply with the law. We share information when federal, state or local law requires it, including with the U.S. Department of Health and Human Services if it wants to confirm we are complying with federal privacy law.
Public health and safety. We may share information to report certain diseases to public health authorities, report adverse events or product problems to the U.S. Food and Drug Administration, report suspected abuse, neglect or domestic violence, and prevent or reduce a serious threat to anyone's health or safety.
Health oversight. We may share information with agencies that license, inspect and audit laboratories and tissue banks, such as state health departments.
Lawsuits and legal actions. We may share information in response to a court or administrative order, or in response to a subpoena or other lawful process when the law's conditions are met.
Law enforcement. We may share information with law enforcement officials as the law permits, for example in response to a warrant or court order.
Deceased clients. We may share information with a coroner, medical examiner or funeral director as needed for their duties, and with the personal representative of a deceased client's estate.
Organ and tissue donation. We may share information with organizations that handle organ, eye or tissue donation and transplantation. This does not let anyone use a stored specimen, which we handle only as your client agreement and your elections direct.
Workers' compensation. We may share information as workers' compensation laws require or permit.
Specialized government functions. We may share information about members of the armed forces as military command authorities require, and for national security, intelligence and presidential protective services, as the law permits.
Correctional institutions. If you are in custody, we may share information with the correctional institution or law enforcement official as the law permits.
Substance use disorder records. We do not ordinarily receive records protected by 42 C.F.R. Part 2. If we do, we will not use or share them in a civil, criminal, administrative or legislative proceeding against you without your written consent or a court order that meets that law's requirements.
Uses that need your written permission. We will not use or share your health information for marketing that a third party pays us for, sell it, or use or share psychotherapy notes, which we do not keep, unless you give us written permission. Any other use or sharing that this notice does not describe also requires your written permission. You may revoke a permission in writing at any time, except to the extent we have already relied on it.
Stricter state laws. Some state laws give extra protection to certain information, such as HIV and other infectious disease test results, genetic information, and information about sexual or reproductive health. Where a stricter law applies, we follow it.
Changes to this notice. We may change the terms of this notice, and the changes will apply to all the information we have about you. The new notice will be available on request, on our website and in your client dashboard.
For questions about this notice, or to use any of your rights, contact our Privacy Officer:
Privacy Officer, Give Legacy, Inc.
6 Liberty Square #6093, Boston, MA 02109
Email: privacy@givelegacy.com
Phone: 1 617-514-0901
If you believe we have violated your privacy rights, you can file a complaint with us using the details above. You can also complain to the U.S. Department of Health and Human Services Office for Civil Rights by sending a letter to 200 Independence Avenue, S.W., Washington, D.C. 20201, calling 1-877-696-6775, or visiting www.hhs.gov/ocr/privacy/hipaa/complaints/. We will not retaliate against you for filing a complaint.
This notice takes effect on October 8, 2026.